Glasby J, Miller R, Glasby A-M, Ince R and Konteh F.

This research explored the experiences of people with learning disabilities and/or autistic people in long-stay hospitals, alongside families and front-line staff, revealing widespread frustration with a system seen as difficult to navigate and resistant to change. Hospital environments were viewed as unhelpful for recovery, and significant barriers to discharge persist due to systemic inertia, differing professional perspectives, and risk-averse attitudes. Despite longstanding policy efforts, progress remains limited, highlighting the need to centre lived experience in shaping future solutions.

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