Intro

We believe that Positive Behaviour Support (PBS) and Applied Behaviour Analysis (ABA) are inherently flawed approaches, and that Neurodivergent people and people with learning disabilities, along with their families and carers, deserve better.

What is this campaign about?

We know that parents, carers and practitioners want what’s best for Neurodivergent people and people with learning disabilities. We do not judge anyone who has experienced or used PBS, but we know that better, more compassionate alternatives exist and deserve greater recognition.

Neurodivergent people and people with learning disabilities deserve better.

What are we against?

We are against PBS and ABA being considered the only options, the ‘default approach’. We are against the inadequate research base that props up the reputation and position of PBS, in the face of significant concerns from both professionals and the Neurodivergent community.

We are not against parents, carers or practitioners who have used PBS, believing in good faith that it is the best (or only) option.

What are we for?

We are for Neurodivergent-affirming therapeutic approaches. We are for considering the needs to the individual, not the societal constructs which they are expected to conform to. We are for compassion, empathy and understanding. We are for listening to the many voices within the Neurodivergent community who have been raising concerns about PBS for decades.

We are for better than PBS and ABA.

Why?

Why we’re against PBS & ABA

Position statement

Position statement summarising the evidence base on PBS

We are co-authors and signatories of the Culture of Care position statement on PBS, alongside delivery partners the Foundation of Nursing Studies (FONS), Black Thrive Global and the National Confidential Inquiry into Suicide and Safety in Mental Health (NCISH) and lead delivery partner, the National Collaborating Centre for Mental Health (NCCMH).

An easy-read version of the position statement will also be available from June 2nd

Endorsed by

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Add your voice to our campaign

alternatives to PBS and ABA

Time to ditch the carrot and stick

Alternatives
  • Designed to address the unique needs of Autistic individuals, particularly within healthcare settings but the framework would work well across other sectors, including education.

    Learn more

  • Designed to support Autistic young people by integrating insights and partnership work with Autistic young people, in addition to drawing on various established models.

    Learn more

  • A guide to promote Autistic-led, autonomy-focused care for both children and adults in all care settings, including institutional environments.

    Learn more

THE MISSING EVIDENCE

Share your lived experience of PBS and ABA

The literature around PBS and ABA is lacking in lived experience from those who have received these approaches. We believe that considering lived experience is vital to establishing best practice.

Fill in this short survey form to share your story as part of our campaign. You can remain anonymous and specify the ways we can use your words.

Share your story

Share your story

our position

What about PBS and ABA for people with learning disabilities?

We believe that many of the concerns around PBS and ABA that apply to Autistic people are also relevant to those with learning disabilities.

Concerns include that the approach does not inherently support human rights, that there is huge variation in quality and design of delivery, and that this approach may be adding to harm, trauma, and distress. There are also significant concerns about the quality of many research studies (Pukki et al).

Whilst there is, arguably, a stronger evidence base supporting the effectiveness of PBS for people with learning disabilities, it is concerning that in over 40 years of practice, there still isn't clarity on what people with learning disabilities think about this and how they experience PBS.

Our collective goal should be to improve life experiences and well-being, not modify behaviours to fit normative expectations – whether for Neurodivergent people or people with learning disabilities.

Resources

NdC original resource

Guide to PBS and ABA
for professionals, parents
and caregivers

View online

Download PDF

Additional PBS & ABA resources from our library


FAQs

FAQs
  • “Positive behavioural support is a multicomponent framework for (a) developing an understanding of the challenging behaviour displayed by an individual, based on an assessment of the social and physical environment and broader context within which it occurs; (b) with the inclusion of stakeholder perspectives and involvement; (c) using this understanding to develop, implement and evaluate the effectiveness of a personalised and enduring system of support; and (d) that enhances quality of life outcomes for the focal person and other stakeholders.”

    1 Gore, N. J., McGill, P., Toogood, S., Allen, D., Hughes, J. C., Baker, P., ... and Denne, L. D. (2013). Definition and scope for positive behavioural support. International Journal of Positive Behavioural Support, 3(2), 14-23 

  • “At its core, ABA is the practice of utilizing the psychological principles of learning theory to enact change on the behaviors seen commonly in individuals diagnosed with ASD (Lovaas et al., 1974). Ole Ivar Lovaas produced a method based on the principles of B. F. Skinner’s theory of operant conditioning in the 1970s to help treat children diagnosed with ASD (or “autism” at the time) with the goal of altering their behaviors to improve their social interactions (Lovaas et al., 1973; Skinner, 1953; Smith & Eikeseth, 2011).”

    Gitimoghaddam M, Chichkine N, McArthur L, Sangha SS, Symington V. Applied Behavior Analysis in Children and Youth with Autism Spectrum Disorders: A Scoping Review. Perspect Behav Sci. 2022 May 18;45(3):521-557. doi: 10.1007/s40614-022-00338-x. PMID: 36249174; PMCID: PMC9458805. 

  • Behaviourism was founded on the belief that only externally observable behaviours count, and that thoughts and feelings (‘private events’ or ‘inner variables’) are not always relevant to how to control behaviour.

    Cooper, J. O., Heron, T. E., and Heward, W. L. (3rd Ed. Global Ed. 2020). Applied Behavior Analysis. Pearson Education. 

  • Although BILD state that ‘PBS and ABA are not the same thing’ (2022). Gore et al. (2022) and MacDonald (2016) note that Positive Behaviour Support is founded on, and still underpinned by, the principles of Applied Behaviour Analysis. PBS has attempted to avoid the punishment procedures which are more common in ABA and has been more open to collaboration with a wider variety of professionals. Johnston et al. (2006:38) described PBS as ‘…a watered-down or less technical version of ABA, more marketable to service providers without ABA training as it requires less technical expertise, which is less robustly evaluated and involves less vigorous training.’ MacDonald also notes that ‘…when the implementation of PBS is described, it is very difficult to differentiate it from ABA.’ 

    Gore, N. J., Sapiets, S. J., Denne, L. D., Hastings, R. P., Toogood, S., MacDonald, A., ... and Williams, D. (2022). Positive behavioural support in the UK: a state of the nation report. International Journal of Positive Behavioural Support, 12(1), i-46.

    MacDonald, Anne (2016) An Evaluation of Staff Training in Positive Behaviour Support. Doctor of Philosophy (PhD) thesis, University of Kent.

    Johnston, J. M., Foxx, R. M., Jacobson, J. W., Green, G., and Mulick, J. A. (2006). Positive behavior support and applied behavior analysis. The Behavior Analyst, 29, 51-74. 

  • Applied Behaviour Analysis (ABA) and Positive Behaviour Support (PBS) are approaches that focus on modifying outward behaviours to conform to societal norms. These behaviourist-based approaches do not adequately consider the preferences, needs, or consent of Neurodivergent people. They often don’t seek to understand the underlying reason, motivation, or internal experiences (emotions, sensations, and thoughts) of the individual. This dehumanises the person and leads to masking behaviours and suppression of natural and healthy Neurodivergent traits, such as stimming. This suppression can cause intense distress, and trauma and negatively impact wellbeing. By focusing on supressing the behaviour of individuals ABS and PBS fails to address the systemic and societal barriers Neurodivergent individuals face. 

    The International Journal for PBS (Gore et al 2022) state that:  

    PBS … is not intended for persons identifying as neurodivergent who do not have a learning disability. 

  • Arguably, there is a stronger evidence base about the effectiveness of PBS for people with learning disabilities. However, it's concerning that in over 40 years of practice, there still isn't clarity on what people with learning disabilities think about this and how they experience PBS. There are also significant concerns about the quality of many research studies (Pukki et al). NDC believes that many of the concerns that apply to Autistic people are also relevant to people with a Learning Disability. Concerns include that the approach is not inherently human rights supporting, that there is huge variation in quality and design of delivery, and that this approach may be adding to harm, trauma, and distress.

    Our collective goal should be to improve life experiences and well-being, not modify behaviours to fit normative expectations.

    Pukki, H., Bettin, J., Grey Outlaw, A., Hennessy, J., Brook, K., Dekker, M., Doherty, M., Shaw, S. C. K., Bervoets, J., Rudolph, S., Corneloup, T., Derwent, K., Lee, O., Garcia Rojas, Y., Lawson, W., Vidal Gutierrez, M., Petek, K., Tsiakkirou, M., Suoninen, A., Minchin, J., Döhle, R., Lipinski, S., Natri, H., Reardon, E., Villarreal Estrada, G., Platon, O., Chown, N., Satsuki, A., Milton, D., Walker, N., Roldan, O., Herrán, B., Limón Cañedo, C., McCowan, S., Johnson, M., Turner, E. J., Lammers, J., & Yoon, W. (2022). Autistic perspectives on the future of clinical autism research. Autism in Adulthood, 4(1), 1-12. https://doi.org/10.1089/aut.2022.0017

  • ABA and PBS are often presented as effective interventions, so it is crucial to understand the concerns raised by many Neurodivergent individuals, advocates, and researchers. 

    ABA, PBS, and other radical behaviourist approaches may seem helpful and like they ‘work’ but often prioritise compliance and behaviour modification over the holistic well-being and autonomy of Neurodivergent individuals and embed masking behaviours. There is not an evidence base to support their use, and application for Neurodivergent individuals is not best practice.  

    Many Neurodivergent adults report negative experiences with these methods, emphasising the need for alternatives that respect their diversity. 

  • Compassionate and neurodiversity-affirming alternatives to ABA and PBS prioritise the well-being, autonomy, and individuality of Neurodivergent people. They are informed by Neurodivergent voices, and culture and presume competence, taking a strengths-based approach and tailoring support to individuals' needs. These alternatives create a supportive and respectful environment which honours individual goals, milestones, needs, and strengths, instead of enforcing conformity. 

    Approaches which are relationship-based, person-centred, regulation-focused, and trauma-informed, and prioritise sensory-friendly and low-arousal environments, like the SPACE framework, NEST approach, and the National Autistic Taskforce's Key Principles of Quality Care for Autistic People, foster dignity, trust, and empowerment. By choosing compassionate and neurodiversity-affirming, respectful alternatives, professionals can support Neurodivergent individuals to authentically thrive while cultivating a sense of self-worth, acceptance and belonging. 

Further reading from our blog