Cage, Botha, McDevitt, King, Biscoe, Tucker and Pearson (2024)

Many adults seeking an autism diagnosis find the process difficult, even though getting diagnosed can be life-changing. This study worked closely with people currently going through diagnosis in the UK and found common experiences of crisis before seeking diagnosis, feeling understood once diagnosed, frustration with the diagnostic process, and a lack of support afterward. The research suggests that improving diagnosis and support requires listening to autistic people, making services more flexible, and better recognising diverse identities.

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