Davies, Matthews, Romualdez, Pellicano and Remington (2024)

There is little research into the Autistic experience of aging. Autistic people cite retirement as an important part of their aging process. This study was conducted through semi-structured interviews with eight Autistic people aged between 56-70. All of the participants were retired or semi-retired. The data was then analysed via reflexive thematic analysis. The findings of the study showed that experiences were diverse – some participants reported challenges in planning and adjustments whilst others saw the change as a move away from challenging work environments. Leisure time was appreciated by some participants, but others noted ongoing responsibilities hindered their leisure activities. Whilst there were differences commonality was found in lack of adequate support for Autistic people during retirement. There were also concerns with regards to the aging process, including – health decline and the possibility of entering residential care. The authors conclude that further research is needed to examine the suitability of residential care, including considering Autistic-led group living arrangements, and avenues for improving support both during and after retirement for Autistic people.

View Resource